Thalassemia projects:

1. Your blood their life!

2. Educational programs on thalassemia for patients living in the regions of Azerbaijan.



Make a Difference Today!

Every contribution brings us closer to ensuring that children with Thalassemia can live without the fear of interrupted treatments. Join us in providing these children with a chance to lead healthy lives. Your support can make a difference—one donation at a time.



About thalassemia

Approximately 7% of the world's population is believed to carry a hemoglobin disorder, including thalassemia. In certain regions, the prevalence of carriers can surpass 20%.

Thalassemia is most common in countries like Italy, Cyprus, Turkey, and the Middle East. It’s also a significant concern here in Azerbaijan!


Thalassemia is a blood disorder resulting from a group of genetic defects that disrupt the production of hemoglobin—a protein in red blood cells responsible for transporting oxygen from the lungs to the rest of the body. This leads to a reduced number of functional red blood cells and lower oxygen levels in the bloodstream, causing various health issues depending on the type and severity of the condition.

Thalassemia is a hereditary condition, meaning it is passed from parents, both of whom are carriers, to their children. Thalassemia carriers generally do not need treatment or medical intervention throughout their lives. In many cases, carriers are unaware of their condition and would not know about it without specialized blood testing.

It is important to understand that if both parents are carriers of the gene, there is:

  • 25% chance that the child will have thalassemia,
  • 50% chance that the child will be a carrier of the gene but will not have the disease
  • 25% chance that the child is not a carrier of the thalassemia gene and will not pass this gene on to future generations.


Treatment of thalassaemia


Patients with thalassaemia require:

  • Regular blood transfusions once or twice a month (according to their needs) throughout their life.
  • Daily medication (called chelation therapy) to remove iron that accumulates in the body because of blood transfusion.
  • Should be followed up on a regular basis by hematologists and other experts, such as endocrinologists, heart and liver specialists, etc., to make sure that they grow as normally as possible, with no complications in vital organs





Patients that receive proper treatment enjoy a very good quality of life and their life expectancy is not very different from that of the general population.

Importance of blood donation

The problem with donor blood still exists. The fact is that thalassemic children need blood transfusions 1-2 times a month, and on average they need to receive about 25-30 liters. Therefore, there is a great need to organize mass blood donation events.


Donating blood regularly can also benefit you in a few ways:


  • Reduces your risk of heart attack
  • Donating blood at least once a year can help improve your blood flow and reduce arterial blockages.
  • Donating blood helps reduce the amount of iron in your blood, reducing the risk of atherosclerosis.
  • Reveals potential health issues. You'll get a mini exam before your blood draw. This checkup can help reveal health issues you may not have been aware of.
  • Lowers your risk of cancer. One of the benefits of donating blood and reducing iron stores is that it can reduce your risk of cancer.


Our partnership

Azerbaijan Thallasemia Federation


The Thalassemia Federation of Azerbaijan is a public patient organization focused on promoting blood donation, raising awareness about thalassemia, and providing education to patients and their families to ensure timely and proper treatment.

Our mission is to transform the perspective of thalassemia patients towards their personal lives, fostering a sense of belonging and capability. We believe that our children, like their peers, are smart, inquisitive, and talented. Our goal is to help them realize that they are not only essential to their families but also to society. We strive to instill in them the belief that they are equal to healthy individuals and capable of achieving the same successes. Through our care and compassion, we aim to set an example, encouraging them to care for their loved ones in the future. We are committed to providing love, hope, and faith in their bright futures.

Video
See a video of our processes and best projects of this year
We are so proud of our work
There are some cases of our projects
Smile during blood transfusion
December 28, 2021
Mingachevir educational “Patient School”
22 July 2023
Memorandum of cooperation
In January 2024, the Azerbaijan Federation signed a memorandum of cooperation with the Organization for Patients with Thalassemia in Uzbekistan.
International Thalassemia Day
May 8, 2024
Educational project “For a Life Without Thalassemia”
May 8, 2024
International Children’s Day
01 June, 2024
“Young Blood Donors School” project
24 July, 2024
20 Years of Advocacy and Achievements
08 February, 2025

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